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Table 1 MSF thalassaemia patient cohort recorded demographic and clinical characteristics September 2019

From: Lessons identified from initiating a thalassaemia programme in a conflict setting: a case study from northeast Syria

Sex

Female 50.3% (n = 190)

Clinical status

Active* 74.3% (n = 281)

Non-active* 23.8% (n = 90)

Died 1.9% (n = 7)

Age

 < 1 year 2.4% (n = 9)

1–5 years 28.6% (n = 108)

6–10 years 31% (n = 117)

11–15 years 20.4% (n = 77)

16–20 years 11.1% (n = 42)

 > 20 years 6.6% (n = 25)

 

Range: 0.3–39 years

 

Median: 9.7 years

Governorate

Raqqa 70.1% (n = 265)

Aleppo 25.7% (n = 97)

Deir es-Zor and Al Hassekah^ 2.4% (n = 9)

Unidentifiable 1.9% (n = 7)

  1. *Patients were categorised as ‘active’ if they had attended the thalassaemia clinic within the past five months, and ‘non-active’ if they last attended more than five months ago. ^Governorates combined to suppress small numbers