Table 1 List of Included Articles
From: A systematic literature review of the ethics of conducting research in the humanitarian setting
Title | Author | Year | Ref. | Country |
|---|---|---|---|---|
Public health and humanitarian interventions: Developing the Evidence Base | Banatvala et al. | 2000 | [41] | United Kingdom |
Ethics of research in refugee populations | Leaning et al | 2001 | [71] | United States |
Ethical Codes in Humanitarian Emergencies: From Practice to Research? | Black, R et al. | 2003 | [57] | United Kingdom |
The Dual Imperative in Refugee Research: Some Methodological and Ethical Considerations in Social Science Research on Forced Migration | Jacobsen et al. | 2003 | [59] | International |
Are adaptive randomized trials or non-randomized studies the best way to address the Ebola outbreak in west Africa? | Lanini et al. | 2003 | [51] | International |
Is it ethical to study what ought not to happen? | Rennie | 2006 | [55] | United States |
Do aid agencies have an ethical duty to comply with researchers? A response to Rennie | Zachariah et al. | 2006 | [63] | International |
The Ethical Challenges of Field Research in Conflict Zones | Wood | 2006 | [62] | United States |
Fieldwork and social science research ethics | Contractor et al. | 2008 | [58] | India |
Ethical Challenges in Conducting Research in Humanitarian Crisis Situations | Mfutso-Bengo et al. | 2008 | [50] | International |
The control of foreigners as researchers in Thailand | Ditton et al. | 2009 | [47] | Australia |
Real-time Responsiveness for Ethics Oversight During Disaster Research | Eckenwiler, et al. | 2009 | [24] | International |
Ethics of Conducting Research in Conflict Settings | Ford et al. | 2009 | [48] | International |
Ethical considerations of research in disaster-stricken populations | Jesus et al. | 2009 | [64] | United States |
Health Research in Complex Emergencies: A Humanitarian Imperative | Pringle et al. | 2009 | [60] | Canada |
Conducting research in the aftermath of disasters: ethical considerations | O’Mathúna | 2010 | [23] | Ireland |
Reflections on Ethical and Practical Challenges of Conducting Research with Children in War Zones: Toward a Grounded Approach | Wessells | 2013 | [61] | United States |
Conducting surveys in areas of armed conflict | Mneimneh et al. | 2014 | [68] | Unites States |
Use of a bibliometric literature review to assess medical research capacity in post-conflict and developing countries: Somaliland 1991–2013 | Boyce et al. | 2015 | [45] | International |
Ethics, emergencies and Ebola clinical trials: the role of governments and communities in offshored research | Folayan et al. | 2015 | [30] | International |
Research ethics in the context of humanitarian emergencies | O’Mathúna | 2015 | [27] | Ireland |
Innovations in Research Ethics Governance in Humanitarian Settings | Schopper et al. | 2015 | [31] | International |
“Losing the tombola”: a case study describing the use of community consultation in designing the study protocol for a randomised controlled trial of a mental health intervention in two conflict-affected regions | Shanks et al. | 2015 | [42] | International |
Ethics in Community-Based Research with Vulnerable Children: Perspectives from Rwanda | Betancourt et al. | 2016 | [43] | International |
The Ebola clinical trials: a precedent for research ethics in disasters | Calain | 2016 | [53] | Switzerland |
Managing Ethical Challenges to Mental Health Research in Post-Conflict Settings | Chiumento et al. | 2016 | [21] | United Kindom |
Research as intervention? Exploring the health and well-being of children and youth facing global adversity through participatory visual methods | D’Amico et al. | 2016 | [65] | Canada |
The Challenge of Timely, Responsive and Rigorous Ethics Review of Disaster Research: Views of Research Ethics Committee Members | Hunt et al. | 2016 | [11] | International |
Emergency response in a global health crisis: epidemiology, ethics, and Ebola application | Salerno et al. | 2016 | [52] | International |
Ethics review of studies during public health emergencies - the experience of the WHO ethics review committee during the Ebola virus disease epidemic | Alirol | 2017 | [38] | Switzerland |
Ethical considerations for children’s participation in data collection activitie during humanitarian emergencies: A Delphi Review | Bennouna et al. | 2017 | [67] | United States |
Reflections on the ethics of participatory visual methods to engage communities in global health research. | Black, GF et al. | 2017 | [44] | International |
Challenges in preparing and implementing a clinical trial at field level in an Ebola emergency: A case study in Guinea, West Africa | Carazo et al. | 2017 | [46] | International |
Ethical standards for mental health and psychosocial support research in emergencies: review of literature and current debates | Chiumento et al. | 2017 | [22] | United States |
Research in disaster settings: a systematic qualitative review of ethical guidelines. | Mezinska et al. | 2017 | [35] | International |
Conducting Science in Disasters: Recommendations from the NIEHS Working Group for Special IRB Considerations in the Review of Disaster Related Research. | Packenham et al. | 2017 | [26] | United States |
A Systematic Review of Ebola Treatment Trials to Assess the Extent to Which They Adhere to Ethical Guidelines | Richardson | 2017 | [36] | United Kingdom |
Research Ethics Governance in Times of Ebola | Schopper et al. | 2017 | [29] | International |
Familiar ethical issues amplified: how members of research ethics committees describe ethical distinctions between disaster and non-disaster research | Tansey et al | 2017 | [33] | Canada |
Research ethics and evidence for humanitarian health | O’Mathúna et al | 2017 | [28] | International |
Research in epidemic and emergency situations: A model for collaboration and expediting ethics review in two Caribbean countries | Aarons | 2018 | [39] | Trinidad and Tobago |
Addressing the challenge for expedient ethical review of research in disasters and disease outbreaks | Aarons et al. | 2018 | [66] | Trinidad and Tobago |
Ethical Challenges Among Humanitarian Organisations: Insights from the Response to the Syrian Conflict | Funk et al. | 2018 | [49] | United States |
Research Ethics Committees (RECs) and epidemic response in low and middle income countries | Bain et al. | 2018 | [40] | International |
Ethical Issues in Conducting Research With Children and Families Affected by Disasters | Ferreira et al. | 2018 | [70] | International |
Social value, clinical equipoise, and research in a public health emergency | London et al. | 2018 | [56] | United States |
Individual and public interests in clinical research during epidemics: a reply to Calain: In response to: Calain P. The Ebola clinical trials: a precedent for research ethics in disasters | Rid | 2018 | [54] | United Kingdom |
Health-emergency disaster risk management and research ethics | Chan et al. | 2019 | [34] | International |
Ethical Challenges in Humanitarian Health in Situations of Extreme Violence | Collaborative | 2019 | [69] | United States |
The ethical contours of research in crisis settings: five practical considerations for academic institutional review boards and researchers | Falb et al | 2019 | [25] | United States |
Mention of ethical review and informed consent in the reports of research undertaken during the armed conflict in Darfur (2004–2012): a systematic review | Hussein et al. | 2019 | [37] | International |
Ethics preparedness: facilitating ethics review during outbreaks- recommendations from an expert panel | Saxena et al | 2019 | [32] | International |